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Dementia poses a profound and difficult journey for those directly affected, and for their loved ones and caregivers too. Life at home goes through a significant change, but with the right tools, some patience and compassion, it is possible to create a fulfilling home environment while caring for a loved one with dementia. This book is full of valuable guidance and support as you navigate the transition from intimate relationship to the role of compassionate caregiver. It explores the foundations of understanding the person with dementia and the daily challenges they may encounter, while also offering insights that help caregivers to forge a healthy approach to understanding their loved ones and themselves. The second part of the book is an A-Z exploration of issues that caregivers face when living with a person with dementia. Each chapter is skilfully interwoven with real-life anecdotes that will enhance the reader's understanding and connection to the material, making this the perfect resource for family caregivers of people with dementia.
People with dementia are uniquely qualified to discuss the challenges of their condition and the features of effective support, but their voices are all too often drowned out in research and debates about policy. It's time for that to change. Dementia Enquirers is an ambitious and novel programme of work which has tested out what it means for people with dementia to lead research and has developed a new 'driving seat' approach to co-research. This ground-breaking book features 26 research projects led by groups of people with dementia, supported by group facilitators and academics, to make their voices heard. Topics include giving up driving, GP dementia reviews, living alone with dementia, and using AI platforms such as smart speakers. The book also describes how people with dementia shaped the entire programme, and addressed head-on issues such as ethics approval processes and complex research language. A key read for anyone involved in dementia support, this research brings the voices of people with dementia to the fore to explore their experiences of researching the condition.
Dementia not only affects the person presented with the diagnosis, but their family and friends too. This book provides practitioners with strategies to support the whole family and understand their dementia journey both pre- and post-diagnosis. This is facilitated through a series of activities and reflective prompts. There is also a dedicated chapter offering structured exercises for health and social care practitioners and students. The book introduces the Lawrence family, where Peter has been diagnosed with dementia, and provides perspectives from each family member, allowing practitioners to become acquainted with the lived experience of everyone involved. The reflective questions allow readers to become actively engaged to maximise their knowledge and understanding, and to better contextualize what the dementia experience feels like for family and friends. With its focus on the all-important lived experience of the whole family during the diagnostic process and beyond, this is essential reading for any practitioner working with people with dementia.
“The voice of lived experience is ever growing and without doubt we should never miss an opportunity like this to listen, capture and learn from it.” Paola Barbarino, CEO, Alzheimer’s Disease International “This latest book will help so many people - those with dementia and their loved ones.” Victoria Derbyshire, British Journalist, Newsreader and Broadcaster “Talking with Dementia Reconsidered is a landmark, which will inspire professionals, researchers and the upcoming cohort of people whose lives are affected by dementia.” Tom Dening, Professor of Dementia Research, School of Medicine, University of Nottingham, UK “I would strongly advise all health and social care profess...
This essential textbook on dementia care introduces the knowledge that nurses need, including the evidence base for practice and the guidance to transfer this newly acquired knowledge into everyday practice. Each of the 25 chapters are written by experts in the field of dementia care and are grounded in thoroughly researched, up-to-date evidence, have a direct bearing to nurse practice, and use case studies to give examples of application of the evidence to practice. It begins by introducing dementia as a diagnosis, a syndrome, and a set of diseases, signs and symptoms. It then deals with various principles that underpin dementia care, including person-centred care, behaviours that challenge, risk management, and understanding relationships affected by dementia. Finally, it assesses dementia care across a range of care settings, such as primary care, care homes, domiciliary care, acute hospital, and hospice services.
Many new pieces of technology can be beneficial to individuals living with dementia, including both hardware and software. This straightforward guide summarises the current research on this growing topic, and gives practical advice on how available technology can be used to improve the everyday lives of people with dementia. Looking at a range of available products, such as off-the-shelf computers and smartphones, to dementia specific applications and programs, it also addresses some common obstacles and barriers faced when introducing technology in dementia care. The past twenty years have seen an array of technologies developed to improve the day-to-day lives of people with dementia; this guide shows how they can be effectively used.
Lisa didn't think anything could be more devastating than the death of her beloved husband. But then she lost her sister and father too - all in the space of 17 months. A tale of love, loss and laughter, this life-affirming memoir describes one woman's determination to survive unbearable grief - and get back into running - one step at a time.
Selected for Reading Well for Dementia 2024: endorsed by health experts, charities and people affected by dementia. A family-led vision of what carers of people with dementia need and want to know. Supporting families and carers in their day-to-day life with dementia, this unique resource combines real stories from families with expert responses and advice for specific issues and concerns. This resource is based on the real stories and real questions brought to the Admiral Nurse Dementia Helpline, peer support groups and clinical networks. Including questions around diagnosis, peer support, balancing risks, care transitions and end of life planning, the chapters are devised to support you, and give you the tools to live better, when dementia enters your life.
Dementia can add a layer of complexity to health and social care, as problems with communication and understanding can make it more difficult to diagnose and treat other conditions and illnesses. For many people living with dementia, generalist clinicians in primary care will be their first port of call. This FAQ guide examines issues experienced by these clinicians during their daily practice, and offers expert advice on how to support people living with dementia. Each section includes a case study to illustrate a common concern, followed by analysis of the underlying issues and suggested approaches or solutions from an experienced Admiral Nurse. Topics include distressed behaviours at home and in clinical settings, managing fall risk, supporting older carers or those with disabilities, and advance care planning. This evidence-based guide sets out skills and approaches for all health professionals to provide excellent person-centred care for people living with dementia.